“I faced difficulties adjusting myself here in Sabah with my health condition, even though there are foods that are gluten-free available here now. There is a stigma of speaking about a disease; it’s hard to make people understand that I simply cannot eat food with gluten. You cannot see my disease but it doesn’t mean that I won’t get sick. A tiny trace of gluten can make me ill, even in cooking utensils. It has to be washed and cleaned properly.”
I have tried to eat in some restaurants here in Malaysia or Thailand or Indonesia and, while, they seemed understand what I can eat and what not, when I start to explain to about cleaning the wok or utensils for cooking and so on they look at me as a fussy guest rather than a person with a serious disease.
I have been told, from some friends that I’m exaggerating but they don’t really understand about this disease or what will happen in my body or even how my life can be in danger if I even ingest a small amount of gluten.
I always give people the example that if I was without a leg and you saw me, I’m sure first thing you will provide a comfortable chair or place where I can seat and stay with others, but with a disease that you can’t see from outside how should I explain that this is a immune system disease and I’ll feel very sick later on?
Some non-food products may contain hidden sources of gluten (soup mixes, salad dressings, sauces, etc.) and sometimes in others form (lipstick, toothpaste and mouthwash, certain vitamins, mineral, herbal supplements, medications, stamps and envelopes you have to lick, etc etc).
There is no cure for celiac disease, the only effective treatment for this disorder is a gluten-free diet. Let’s start to make people understand and so we can live simply happy and healthy !!!!
But at the contrary I’m very lucky because I have a very amazing friends around me who always try to make feel comfortable and share my cooking. They say that I’m a good cooker but I think also they understand my difficulty and wanted make me so comfortable even buying GF food where they are when they will find it!!!!
When I have been invited to some party I’m always going with my take away home made and this is the only way to share time with friends even I need always to explain why I can’t take the food prepared for the party…this is standard for me and I’m happy to keep sharing as maybe others people start to be aware about this even though someone still thinking I’m fuzzy and I don’t trust others cooking. But trust me it’s not that at all and looking forward more and more people will be knowing and share with me more and more!!!!